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Below the Belt. “This film will save lives.” WATCH THE TRAILER. HOST A SCREENING. As four patients urgently search for answers to mysterious symptoms, Below the Belt exposes widespread problems in our healthcare systems that disproportionately affect women.
29 mar 2023 · With Ted Anderson, Natalie Archer, Victoria Barrett-Rhine, Stephanie Berenice. In the personal and inspiring stories of four patients urgently searching for answers to mysterious symptoms, Below the Belt exposes widespread problems in our health care systems.
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- 1 min
- Shannon Cohn
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16 lug 2023 · Below the Belt aired on PBS last month is available to stream for free at PBS.org and on the PBS streaming service until July 19, 2023. Here are seven big takeaways from watching the film...
28 apr 2022 · BELOW THE BELT Trailer (2024) - YouTube. Endo What. 1.36K subscribers. Subscribed. 721. 53K views 1 year ago. From Executive Producers Hillary Rodham Clinton, Rosario Dawson, Corinne Foxx &...
- 1 min
- 53,9K
- Endo What
- Overview
- A misunderstood condition
- Documenting women’s stories
- Living with endometriosis as a nurse
- “Below the Belt” is an educational tool
- A catalyst for change
“Below the Belt” is a new documentary directed by Shannon Cohn and executive produced by Hillary Clinton that showcases the stories of several women as they overcome the challenges of living with endometriosis.
Back in May, former U.S. Secretary of State Hillary Rodham Clinton strode out onto the stage at the Museum of Modern Art in New York City to shed a needed spotlight on an understudied and often misunderstood condition: endometriosis.
“It’s so maddening that so much of women’s health is still not given the attention it deserves,” Clinton told the packed museum auditorium, making a call to action to the audience, with words that echoed her famous “women’s rights are human rights” speech at the 1995 United Nations Fourth World Conference on Women in Beijing.
Clinton was speaking at the world premiere of “Below the Belt,” a new documentary she is a co-executive producer of from filmmaker Shannon Cohn.
The film details the experiences of four women from different walks of life, following them through years of appointments and surgeries, oftentimes marked by setbacks and medical gaslighting, as they try to put a name to their symptoms and chronic, debilitating, pain.
While each woman profiled has a very different story, Cohn’s film does trace a unifying theme that connects them all: resilience.
Endometriosis is a condition where tissue that is similar to that of the endometrium — the lining of the uterus — exists outside the uterus. This can have wide-ranging effects, resulting in chronic inflammation that can generate scar tissue along the pelvis, for example, but can be found in other areas of the body, according to WHO.
Some other examples can include cystic ovarian endometriosis in the ovaries, and deep endometriosis located in the recto-vaginal septum, bladder, and bowel region.
Endometriosis can result in chronic pelvic pain, pain during or after sex, fatigue, pain during urination, painful periods, nausea and abdominal bloating, as well as anxiety and depression, among other symptoms. In some cases, it can also result in infertility.
This constant, consistent pain can have a negative cascade of effects on a person’s life, impacting their ability to work, to carry out normal day-to-day tasks, seriously affecting their social and family lives. It can also be a strain on one’s mental health.
You also might have no idea someone in your life has the disease. A 2010 paper reports that 20 to 25% of people with the condition are asymptomatic.
Oftentimes it gets confused with other conditions, like gastrointestinal problems like irritable bowel syndrome (IBS) and Crohn’s disease.
“We as humans, we love stories, we’ve been telling stories since history has started being recorded, we love stories and stories resonate deeply with us,” Cohn said. “The goal of documentaries. for example, when you tell a story, you get an audience to care about the people in stories. The hope is — by extension — they care about the issues that those people are going through.”
This film was a labor of love.
Cohn first started shooting footage for the film in 2012, with a different version called “Endo What?” — a shorter educational film released in 2016 — that served as both a tool to de-stigmatize the condition and also serve as something of an opening act for “Below the Belt.”
The new film follows four different women: Jenneh Rishe, a registered nurse and endometriosis advocate; Emily Hatch Manwaring, an endometriosis activist, events coordinator and videographer, and the granddaughter of the late Senator Orrin Hatch (who was also an executive producer on the film); Kyung Jeon-Miranda, a visual artist out of Brooklyn, designer at Somos Arte and director of La Borinqueña Grants Program; and Laura Cone, a Canadian early childhood consultant and endometriosis advocate.
It offers a unique snapshot of some of the most intimate moments in the life of someone living with a chronic illness.
There are scenes of the women at home with their loved ones and caregivers, moments of frustration, and distressing conversations with their providers. There are also moments of levity, of connecting with support systems and community, of fighting for one’s health and livelihood in the face of adversity.
Jenneh Rishe, BSN, RSN, is one of the women who let Cohn into her life. She also founded The Endometriosis Coalition, a nonprofit centered on raising awareness of and educational resources around endometriosis, as well as authored a book about “Part of You, Not All of You.”
In the film, Rishe’s journey as a healthcare professional trying to navigate a healthcare system that doesn’t fully understand or acknowledge her condition is powerful. It also showcases the power that can come from the support of loved ones and caregivers, as her now-husband Joe offers support by her side.
Cohn followed Rishe for about six years, an experience that she said “obviously is not natural,” but offered a unique opportunity to educate others about endometriosis.
“Just to have someone in the room with us was strangely comforting, and also having someone who understood [endometriosis] and offer support — Shannon and I became such good friends and she was just so respectful of our journey,” Rishe told Healthline about the six-year shoot. “She was not pushing and just her being open to how we wanted to share our story made it all so much easier.”
Even though she was a nurse, Rishe said she never knew anything about endometriosis before her diagnosis. It wasn’t really something that came up in nursing school, which has prompted her to make healthcare literacy about the condition one of her main focuses as an advocate. She recently participated in a panel where nurses from renowned hospitals and nursing schools nationwide came up to her and said “‘wow, I didn’t know any of this.’ “
“So, we are not doing a good job at all of educating our healthcare providers in how to spot what this disease looks like,” she said. “We haven’t scratched the surface. And what is happening is that patients and advocates are doing the leg work, we are doing as best we can outside the classroom and the hospital, but there is a lot of work that needs to be done, and to me, we aren’t asking for anything monumental, just education about a disease that is affecting a large percentage of the population.”
Dr. Jeannette Lager, MPH, associate director of the University of California San Francisco (UCSF) Endometriosis Center, told Healthline that using the platform of a film like “Below the Belt” is effective because it “just helps show that there is a lot of public support for something that is missed and misdiagnosed and delayed in diagnoses.”
Lager, who is not affiliated with this film or Cohn’s work, said just the fact that this documentary can show the journeys of a group of different people with different experiences is a special educational tool that can make jobs like hers easier in getting the word out.
When asked why it’s so hard to just direct attention to this disease, Lager said that chronic pain, in general, is “poorly understood.”
“I think there is this issue of people with uteri, so women and nonbinary people, we know there has always been less research invested in gynecologic health,” she added. “The other thing is the overlapping diagnosis of pain and cramping with periods that for some people is normal to have some pain and cramping with their periods that is not endometriosis. So, I think because of the overlapping that is common, it may not be brought to the forefront as much.”
She said all of the associated GI symptoms, urinary symptoms, and complex pain symptoms that aren’t tied to periods and that can result in misdiagnoses, make this a disease that can fly under the radar. A doctor might come up with a diagnosis of IBS and then move on without further investigation. Meanwhile, the patient will continue to experience this inaccurately diagnosed pain.
“I think research can beget research and as we start to understand, for example, radiology findings for endometriosis, ultrasound versus MRI versus other forms of radiological ways for people to identify it better that would allow for even more research, then that would help increase the accuracy for diagnosis,” Lager added. “You would start to have seed money that would lead to other areas that would hopefully grow to lead to other investigations of treatments to help improve the patient’s quality of life.”
Cohn said it was so important for the film to have “all of these wonderful, powerful, smart women attached …to help amplify” its message.
“With Secretary Clinton, we got the film to her and she saw it and she just said, ‘I cried multiple times that it was such an important story’ and that ‘I want to do whatever I can do to help and get this conversation into the mainstream and get more awareness around endometriosis,’ ” Cohn said. “And we asked her if she would be an executive producer and she said ‘absolutely’ and she is and has been an amazing partner.”
In addition to Clinton, the film’s other boldface producers include Hollywood actors Rosario Dawson, Corinne Fox, and Mae Whitman — who appeared along with Rishe and Orbuch at a post-screening panel at the New York premiere.
For the rest of this year, Cohn said the film will continue to be shown in various screenings. Right now, she is in the final negotiations for a “distribution deal,” but can’t share those details, yet. The goal is to see that materialize hopefully “early next year.”
28 giu 2022 · The film is directed by Shannon Cohn and exposes widespread problems in our healthcare systems through the lens of four patients urgently searching for answers to mysterious symptoms.
Below the Belt: A film to change endometriosis. Affecting approximately one in 10 women globally, endometriosis can cause debilitating pain for sufferers. However, both culturally and medically, it’s not a widely recognized condition.
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